Tag Archives: Humira

Day 256: Work From Home

I’m so grateful to be able to work from home the days I take my Humira shot (shout-out to the bandaid on my leg!). Usually I take my shots on Thursdays, but since I was traveling this week I got to take it on a Friday. Working from home on Fridays are THE BEST! Although I did spend my entire morning working in one spreadsheet trying to fix and analyze our expense trends, which was a little less than fun. Oh well, my boss was happy so I guess that’s all that matters (at least during working hours).  L had to work late on a project, so I caught up on all of my shows and ate a salad and half a bag of salt & vinegar chips. Balance, yall.

I bought this cardigan when I was doing a HIGH SCHOOL summer program at Boston University. It’s outlived most of my stuff – plus it’s super cozy and warm. I paired my cardigan with a shirt that I’ve had for 10+ years and these Uggs slippers that I bought in high school to be cool. Some days, the oldies but the goodies win!

Sound off: what’s the oldest thing in your closet?

Outfit Details
Cardigan: Urban Outfitters purchased eleven years ago for $40 (similar, similar)
Top: J. Crew Factory purchased ten years ago for $30 (similar, similar)
Shorts: Brooks purchased five years ago for $30 (similar, similar)
Slippers: UGG purchased eight years ago for $100 (similar, similar)

Day 241: Why I’m 25 and Still Cry About Needles

Ever since I was little, I’ve been terrified of needles. A little while ago, I wrote a blog post on my first terrible experience with needles: I had to go through the rabies shots as a three year old. The rabies shots are a series of six shots over the course of 5 days within a month. Ever since then, I’ve been terrified of needles: I had a full blown panic attack behind the potter plant going into the doctors. I’ve passed out watching my sister get her blood taken. I’ve kicked a nurse (when I was a little too old to get away with that). I made my mom drive 6 hours to be with me when I needed a shot in college.

So imagine my surprise when I found out the only medication that could help with my ankylosing spondylitis was an injection. I begged and pleaded with my doctor – surely in our developed country we have a handy, dandy pill I could pop? Unfortunately our medical community is busy trying to cure cancer or something, because I’m stuck with a shot. After some vague “don’t let your past define you” speech that I think was supposed to be inspirational from my doctor, he sent me home with a prescription for Humira and a link to a how-to video. The video was just dumb – who the heck smiles while sticking themselves with a tube of pain while cheerfully talking about breathing. My first go was bad – not only does the injection last ten seconds (but feels like four minutes), it’s actually pretty painful. Coming from a girl who’s fall off horses, broken bones, and ran a marathon,  I’d rank my Humira shot in the top ten easily.

Now I’ve been taking these shots for about seven months, which equates to about 14 shots. I’ve had good days where I sit still and barely cry when L pokes me. There are bad days when I hide in the closet, shaking and pleading with L to not make me do it. Usually L needs to remind me that I need this shot to be able to function. I wish that taking my shot was a painless, smooth transaction, simple as pouring my morning coffee. I know it’s okay to have fears, it’s okay to fail, and it’s okay to cry.

Outfit Details
Top: Unknown brand gifted three years ago (similar, similar)
Vest: LeTote (FATE Quilted Vest) retails for $58 (exact, similar)
Leggings:  UnderAmour gifted six years ago (similar, similar)
Slippers: UGG purchased eight years ago for $100 (similar, similar)

Day 213: I Live with AS and You Can Too…

I am so glad I get to work from home every-other Thursday. I may like this day better than food truck Tuesday at the office because I can get away with wearing leggings all day. Actually scratch that – I hate the whole getting my shot part of today. No tears today, so that’s an improvement.

unspecified-3

I’ve mentioned it before, but I stay home every other Thursday because that’s the day I take my Humira shot for my ankylosing spondylitis. Last night the coolest thing ever happened – someone reached out on Insta who also had AS and wanted to know more about my journey while she was figuring out her AS diagnosis. I remember when I was first diagnosed with AS, I sped to the internet to find anything that I could. I was so scared and shocked – there’s lots of people with fully fused spines and who are in too much pain to get out of bed. There’s not enough good news stories out there about this constantly annoying disease.

unspecified-2

Recently in the news, there’s been some hope. Imagine Dragons singer Dan Reynolds recently came out about his battle with AS. Helgi Olafson is a Ironman triathlete. I’m not touring worldwide or being athletic for 6 hours straight, but I’m active. I have a full-time job. And I’m sure as hell not going to let this thing stop me. Yes, I’m more tired than I used to be and I hate this shot more than I hated drinking my milk as a kid (fun fact, I used to cry. About milk… I was such a peach). But I’m doing just fine.

unspecified-1

I’m going to get through all this. Anyone who’s suffering too, you’re going to get through this too. Yes, it sucks know there’s no cure and yes, you will need to make some life changes. Yes it’s annoying when people assume that because you look normal that you’re needy or dramatic or lying. But there’s a community and there’s an important place for you in this world that supersedes the stuff you’re going to hear at your rheumatologist’s. You will be fine. You’re good.

unspecified

P.S. All of these amazing pictures were taken by my favorite photographer Erika Eveleth. She does a little bit of everything, so if you’re looking for a photographer in the Atlanta area CHECK HER OUT! Her website is here.

Outfit Details
Flannel: J. Crew gifted two years ago (similar, similar)
Vest: Jones New York purchased two years ago for $30 (similar, similar)
Leggings: PINK purchased two years ago for $40 (similar, similar)
Boots: Zulily (Arctic Plunge) purchased recently for $35 (similar, similar)

Day 143: Humira Thursdays

I am SO proud of myself. As I’ve mentioned half a billion times (or approximately ten times, but who’s counting), I get an injection every other week for my ankylosing spondylitis. Those of you new to the blog, AS is a degenerative autoimmune disease that attacks your spine. It’s not particularly enjoyable and can actually be a pretty big deal. I have to see a rheumatologist every other month – let me tell you, if you think regular doctors are always late, rheumatologists are even worse.

At least I’m lucky because there are certain meds that limit the progression of AS and alleviate some of my symptoms. I’m not so lucky that these meds have to be given through an injection and I’m scared of needles. Usually the whole episode of me getting my shot involves me crying in our walk-in closet and L trying to convince me that the shot is good. Either that or I don’t sleep all night in anticipation and end up cleaning the whole house and am exhausted for my actual shot.

Back to the ‘I’m proud of myself’ part of this post – today I made it through my shot with next to no tears. And there was no running around the house to clean random spots and no hiding in the closet. I did it!

Since it’s a work from home day, I never needed to get out of my comfortable clothes. There’s something so rewarding about never even getting in my car for the day. While today’s outfit is definitely function over fashion, I do feel like I’m getting into fall fashion!

Outfit Details
Shirt: J. Crew Factory purchased three years ago for $50 (similar, similar)
Shorts: Brooks purchased five years ago for $30 (similar, similar)

Day 115: Shots, shots, shots, shots…. oh wait, this sucks

Ugh today sucked. As I’ve mentioned a bunch of times of this blog, every other Thursday I have to take a shot to manage my ankylosing spondylitis. My doctor recommends taking my shot out of the fridge the night before so it has time to get to room temperature. The shot hurts less when it’s not thick from the cold. He also recommends that I don’t drink the night before because it will make my blood thinner and make the shot hurt more.

Two guesses how this all turned out….

We drank last night for Levi’s birthday and then I totally forgot to take my shot out of the fridge until an hour before I was supposed to take my shot. So today when Levi was going to give me a shot, I automatically flinched because it hurt like hell. The shot actually went in and out of my skin twice. So yeah, no fun.

Anyways, today I’m hanging out in our new ‘office’ – aka a desk space that we put together in our guest room. I love not having to do work at the kitchen table any more!

New Office Space

Today I wore my comfortable sleeper shorts and a loose white t-shirt. Since it’s my work-from-home day, I never left the house, so no shoes for me!

Outfit Details
Top: Gap purchased eight months ago for $20 (similar, similar)
Shorts: Zulily (Buckhead Beatties) purchased six months ago for $15 (similar, similar)

Day 87: PJs all day, all day

This is embarrassing – I straight-up did not get out of my pj’s all day.

I woke up at 3:30am and could not get back to sleep. So, I tried to make myself useful by cleaning the house, doing laundry, and going for a run. Around 6am, I hit a wall and went back to sleep. When L woke me up at 7:30 for my shot, I was so exhausted that I barely freaked out. I’m counting it as progress.

Like I’ve mentioned before, my employer is great and lets me work from home on my shot days since I can be a little uncomfortable after my shot (I won’t get into the gory details). I spent my day working and then stopped by my friend LB’s for dinner, since she’s going on a week-long family vacation to Wisconsin. My day was pretty much as boring as my outfit.

My outfit was from my college days. Empire 8s was our track conference – they gave the shirts to the winners of the conference meet every year. Our team was a powerhouse, so I have quite a few of these. My shorts say ‘Bombers’ on the butt because that was our mascot. At least it’s unique.

Outfit Details
Top: Empire 8 Track Meet
Shorts: Ithaca College Track team order