Tag Archives: ankylosing spondylitis

Day 143: Humira Thursdays

I am SO proud of myself. As I’ve mentioned half a billion times (or approximately ten times, but who’s counting), I get an injection every other week for my ankylosing spondylitis. Those of you new to the blog, AS is a degenerative autoimmune disease that attacks your spine. It’s not particularly enjoyable and can actually be a pretty big deal. I have to see a rheumatologist every other month – let me tell you, if you think regular doctors are always late, rheumatologists are even worse.

At least I’m lucky because there are certain meds that limit the progression of AS and alleviate some of my symptoms. I’m not so lucky that these meds have to be given through an injection and I’m scared of needles. Usually the whole episode of me getting my shot involves me crying in our walk-in closet and L trying to convince me that the shot is good. Either that or I don’t sleep all night in anticipation and end up cleaning the whole house and am exhausted for my actual shot.

Back to the ‘I’m proud of myself’ part of this post – today I made it through my shot with next to no tears. And there was no running around the house to clean random spots and no hiding in the closet. I did it!

Since it’s a work from home day, I never needed to get out of my comfortable clothes. There’s something so rewarding about never even getting in my car for the day. While today’s outfit is definitely function over fashion, I do feel like I’m getting into fall fashion!

Outfit Details
Shirt: J. Crew Factory purchased three years ago for $50 (similar, similar)
Shorts: Brooks purchased five years ago for $30 (similar, similar)

Day 115: Shots, shots, shots, shots…. oh wait, this sucks

Ugh today sucked. As I’ve mentioned a bunch of times of this blog, every other Thursday I have to take a shot to manage my ankylosing spondylitis. My doctor recommends taking my shot out of the fridge the night before so it has time to get to room temperature. The shot hurts less when it’s not thick from the cold. He also recommends that I don’t drink the night before because it will make my blood thinner and make the shot hurt more.

Two guesses how this all turned out….

We drank last night for Levi’s birthday and then I totally forgot to take my shot out of the fridge until an hour before I was supposed to take my shot. So today when Levi was going to give me a shot, I automatically flinched because it hurt like hell. The shot actually went in and out of my skin twice. So yeah, no fun.

Anyways, today I’m hanging out in our new ‘office’ – aka a desk space that we put together in our guest room. I love not having to do work at the kitchen table any more!

New Office Space

Today I wore my comfortable sleeper shorts and a loose white t-shirt. Since it’s my work-from-home day, I never left the house, so no shoes for me!

Outfit Details
Top: Gap purchased eight months ago for $20 (similar, similar)
Shorts: Zulily (Buckhead Beatties) purchased six months ago for $15 (similar, similar)

Day 87: PJs all day, all day

This is embarrassing – I straight-up did not get out of my pj’s all day.

I woke up at 3:30am and could not get back to sleep. So, I tried to make myself useful by cleaning the house, doing laundry, and going for a run. Around 6am, I hit a wall and went back to sleep. When L woke me up at 7:30 for my shot, I was so exhausted that I barely freaked out. I’m counting it as progress.

Like I’ve mentioned before, my employer is great and lets me work from home on my shot days since I can be a little uncomfortable after my shot (I won’t get into the gory details). I spent my day working and then stopped by my friend LB’s for dinner, since she’s going on a week-long family vacation to Wisconsin. My day was pretty much as boring as my outfit.

My outfit was from my college days. Empire 8s was our track conference – they gave the shirts to the winners of the conference meet every year. Our team was a powerhouse, so I have quite a few of these. My shorts say ‘Bombers’ on the butt because that was our mascot. At least it’s unique.

Outfit Details
Top: Empire 8 Track Meet
Shorts: Ithaca College Track team order

Day 86: Ugh

Every single one of us has some days that are tough and annoying (hence why the best I could do for a blog title is ‘ugh’). The past few days, I just cannot get comfortable. I’m not sure if it’s because I’m nearing the end of my Humira cycle or if all these summer storms are messing with me, but my back has been super uncomfortable lately.

As most of you know, I have a condition called ankylosing spondylitis (don’t worry I can barely pronounce it after two years, much to my doctor’s amusement). Basically the condition means that my spine sucks at its job. Sometimes things like sleeping and sitting can be a little difficult, which leaves activities like running completely off the table some days.

Every other Thursday I take a shot to help manage my symptoms. I strategically decided to take my shot the day before my payday, so it’s like a baby celebration anyway. Tomorrow is my shot day and as much as I hate shots I’m looking forward to some relief.

Today I wanted to continue with the printed pants trend, so I’m wearing these awesome polka-spotted pants that feel like jeans. Speaking of jeans, I heard a little rumor that the next two weeks are going to be jeans weeks at work #score!! On top, I wore the exact combo from this day – mainly because my mom and LB said it looked great!

Outfit Details
Top: Gap purchased three months ago for $14 (similar)
Cardigan: J. Crew Factory purchased six years ago for $40 (similar, similar)
Pants: (similar, similar)
Shoes: Nordstrom Rack (Vince Camuto) purchased three months ago for $50 (similar)

Day 74: Humira Hangover

You know how you feel when you’re hungover – super sleepy, persistent headache, upset stomach, and so on? Well, that’s kinda what I feel like after my Humira shot. Don’t get me wrong; it’s totally worth it – I trade one not so great day for two weeks of running like a normal person, so I’ll take it.

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Day 45: Ankli-WHAT?

I mentioned this a few weeks ago, but I have ankylosing spondylitis. Don’t worry – I barely know how to pronounce it either (even spell check flags this as mispelled). Basically it’s an arthritic condition that affects my spine. Every other Thursday, I have to get an injection in my upper thigh. On the bright side, my injection lets me do normal people things, like run, sleep, and walk. Plus my employer lets me work from home on the days that I get my shot because sometimes it makes me feel sick, so that’s awesome too. On the other hand, I freaking hate shots.

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Day 3: “Comfort Food” Dress

This dress is the clothing equivalent of “comfort food.” This morning, I really needed my comfy dress.

One year ago I was diagnosed with ankylosing spondylitis. The disease is also called ‘bamboo spine’ which makes me think of cute little panda bears, instead of the beast this thing is. Basically AS (as it’s unaffectionately known) attacks my spine and other large joints, causing inflammation. During ‘flare ups,’ I’ll experience sharp pain whenever I move. Recently, my rheumatologist put me on a new medication that requires bi-weekly shots. Today was the first day that we did the shot ourselves at our house.

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