The two party system does not work. Today we’re no longer restricted to define ourselves in a two-dimensional light; we’re not blue or red. We’re not black or white, we’re bi-racial and comprised of so many nationalities, the only way we can be described is American. We’re not gay or straight, we’re bisexual and questioning and queer and transsexual. We no longer fit into clearly defined boxes – our lines are fuzzy and represent a full spectrum of individuals. Right now a poll shows that 60% of Americans are scared or concerned (although, let’s face it, polls clearly are not an accurate indicator in our nation right now). For me, I’m most concerned about health care.
I don’t believe anyone should get a free ride for anything. I work my butt off and I’ve always expected to be wholly responsible for myself, my goals, and my representation in this world. What I didn’t account for was my diagnosis of ankylosing spondylitis. AS is a genetic disease, but I was the first in my family to show any symptoms. My pain started mid-way through my senior year of college. For two years I bounced from doctor to doctor as they tried to figure out how an healthy individual could go from running collegiate track and field to bed-ridden. I tried everything: chiropractors, yoga, more exercise, less exercise, acupuncture, hard-core pain medication, no medication, countless ER visits, physical therapy, x-rays, MRIs, different diets, no alcohol, and much more. In April of 2015, I finally received answers from my rheumatologists about my disease. For the rest of my life, I’ll struggle with flare-ups where it will be uncomfortable to walk. I’ll be at a higher risk for eye, skin, and bone density issues. My spine will start to fuse further, which will make my stance stooped, my bones more brittle, and give me some pretty intense pain.
At this point, my sacroiliac joints are fully fused. Right now I’m on Humira, which is a bi-weekly shot that stops my spine from fusing and minimizes my pain. I’ve been on it for almost six months now and it’s made a world of difference. I can run a 5k (although full marathons are out of my reach for now). Thank goodness for my company insurance or there’s no way I could afford these shots that have so greatly improved my standard of living.
If ObamaCare is repealed in its entirety, my insurance company will be able to drop me for being too expensive to insure. Since ankylosing spondylitis is a pre-existing condition, it’s unlikely I’ll be able to find another provider to take me on. I’m going to need a pretty sizable raise (I’m talking doubling my salary) to be able to afford the specialists, tests, and medication my condition demands.
I’m not a slacker. I’m not a wimp. Unfortunately, ankylosing spondylitis isn’t something I can just power through or ignore. I need support to make sure that the insurance companies are stifled in their quest to make money – they serve a purpose to our society that is greater than making money. With this president elect, that’s my biggest personal fear.
Aside from my own personal concern, I am worried for anyone who feels personally threatened by the comments made by our president-elect. To fully reap the benefits that so many Americans believe a non-career politician like Trump bring to the table, we need to stay vigilant in protecting common civil liberties. To my gay, Muslim, disabled, and black friends, as well as any one else who doesn’t fit in a two-dimensional box, I’m here for you!
Top: LOFT gifted for my birthday (similar, similar)
Skirt: J. Crew Factory purchased three years ago for $60 (similar, similar)
Boots: Marshall’s purchased recently for $40 (similar, similar)
Necklace: LeTote (Anne Klein Hammered Disc Necklace) retails for $32 (exact, similar)