Day 213: I Live with AS and You Can Too…

I am so glad I get to work from home every-other Thursday. I may like this day better than food truck Tuesday at the office because I can get away with wearing leggings all day. Actually scratch that – I hate the whole getting my shot part of today. No tears today, so that’s an improvement.

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I’ve mentioned it before, but I stay home every other Thursday because that’s the day I take my Humira shot for my ankylosing spondylitis. Last night the coolest thing ever happened – someone reached out on Insta who also had AS and wanted to know more about my journey while she was figuring out her AS diagnosis. I remember when I was first diagnosed with AS, I sped to the internet to find anything that I could. I was so scared and shocked – there’s lots of people with fully fused spines and who are in too much pain to get out of bed. There’s not enough good news stories out there about this constantly annoying disease.

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Recently in the news, there’s been some hope. Imagine Dragons singer Dan Reynolds recently came out about his battle with AS. Helgi Olafson is a Ironman triathlete. I’m not touring worldwide or being athletic for 6 hours straight, but I’m active. I have a full-time job. And I’m sure as hell not going to let this thing stop me. Yes, I’m more tired than I used to be and I hate this shot more than I hated drinking my milk as a kid (fun fact, I used to cry. About milk… I was such a peach). But I’m doing just fine.

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I’m going to get through all this. Anyone who’s suffering too, you’re going to get through this too. Yes, it sucks know there’s no cure and yes, you will need to make some life changes. Yes it’s annoying when people assume that because you look normal that you’re needy or dramatic or lying. But there’s a community and there’s an important place for you in this world that supersedes the stuff you’re going to hear at your rheumatologist’s. You will be fine. You’re good.

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P.S. All of these amazing pictures were taken by my favorite photographer Erika Eveleth. She does a little bit of everything, so if you’re looking for a photographer in the Atlanta area CHECK HER OUT! Her website is here.

Outfit Details
Flannel: J. Crew gifted two years ago (similar, similar)
Vest: Jones New York purchased two years ago for $30 (similar, similar)
Leggings: PINK purchased two years ago for $40 (similar, similar)
Boots: Zulily (Arctic Plunge) purchased recently for $35 (similar, similar)

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